Fundraising

Lion Hotel Gourmet BBQ

The Lion Hotel on Melbourne St. North Adelaide has HKSA booked in for two more gourmet bbq Friday night gatherings.
1st August
31st August
each night our fundraising opportunity is from 5 unitl 7pm

Bunnings Munno Para BBQ

Saturday November 1st
If you can help out for a hour or so to serve BBQ for the public please let us know asap.

Harry Potter Movie Night

Sunday December 14th

Bunnings Modbury BBQ

Sunday December 21st
This ia a FANTASTIC opportunity for HeartKids as it is such a busy time of the year. We really need help with this fundraiser so if can spare a hour that would be greatly appreciated.

Information

The forms below may assist you when your child starts childcare/preschool/school.
First_Aid_Action_Plan.pdf
MedHistoryForm.pdf
School_Information_Sheet.pdf
TeachersandCarers.pdf

“1 in every 100 Children born in Australia suffers from CHD”

Thank you for getting in contact with us

Enquiry Pack

Would you like to receive a ‘Free’ Enquiry Pack and find out more more about HeartKids?

Disclaimer

Please remember that the opinions expressed in any article herein represent personal experience only. MEDICAL DETAILS ARE SPECIFIC TO EACH INDIVIDUAL CASE AND MAY NOT BE APPLICABLE TO ANOTHER CHILD. Parents who require more specific information should check with their child’s own Cardiologist.

Also, please note, that the opinions expressed in the articles herein, are those of the author and do not necessarily represent the beliefs or opinions of the committee of Heartkids Nsw Inc.

Further Disclaimer:

Graphics found on this site were not created by the webmaster. They were obtained from various sources on the internet that labeled them as “freely distributable”. If you should discover images in this collection which you recognize as copyrighted, please email the immediately so that they may be removed.

Useful and Interesting Links

Important Partners for South Australian HeartKids

Patient Associations

National and International Organisations

Sad Links

Sadly, sometimes heart children die.

Sometimes families and friends, no matter how much they might wish to, can’t be the one you need to turn to. You may not have lost your child but maybe a friend has and you want to help but can’t quite find the place to start. The following are links to sites in both Australia and overseas that have been started to help families, both parents and siblings who have lost a child.

Our great wish is that we do not have to add these links, however, we are eternally grateful they are available.

Sids and Kids SA is an organisation that offers grief/bereavement counselling to families who have experienced the sudden and unexpected death of a child up to six years of age. There are also groups in the Hunter Valley and other states of Australia. This site was suggested by a member who has used it and found them to be very helpful.

M.I.S.S. Foundation in the USA was started by Joanne Cacciatore after the death of her daughter. There are a lot of different areas on this site and it is the place of the well known ‘kindness project’. While checking this site over we did find it a little sad, informative, complex and also, surprisingly, very uplifting. We have ‘spoken’ with Joanne via email and found her to be a very lovely woman who was pleased to be asked to be a link on our site.

The Compassionate Friends, South Australia was founded in Coventry, England, in 1969, by Rev. Simon Stephens, assistant to the Chaplain in the Coventry and Warwickshire Hospital. Simon noticed that the intensity and duration of parental grief was much greater than that of others who lost loved ones. He brought together two couples whose children had died at the same time, hoping they might comfort one another. It worked. Each parent understood the pain the others were going through and they were able to support and help one another as no one else could. In time, the two couples reached out to other grieving parents, and The Compassionate Friends was founded. Compassionate Friends has Australian Offices. For SA: 4th Adelaide (08) 8351 0344

Further telephone contacts are:

  • Kids Help Line: 1800 55 1800
  • Lifeline: 131 114

Our Contact Details

Need Immediate Support?

Please contact our Family Support Coordinator, Kylie Bath on 0424 505 833.

Are you Travelling to Melbourne or Adelaide?

For information regarding travelling to Melbourne to the Royal Children’s Hospital, please see contact details below.

For information for families travelling to the Adelaide, please contact Kylie Bath. For information on the Women’s and Children’s Hospital in Adelaide, please read the WCH information Booklet wch_information_booklet.pdf and for further information, please visit visit www.wch.sa.gov.au

Accommodation in Melbourne

Max’s Place is a one bedroom apartment, with a kitchen, living and bathroom, which is located directly opposite the Royal Children’s Hospital. It is owned by Tim and Heather Round from Adelaide. Please go to Max’s Place or contact them on 0400 508 139

HeartKids of South Australia

HeartKids of SA Inc.
PO Box 364
North Adelaide SA 5006

Phone: 0406 165 111
Email:

State Manager

Kerry Southwell – 0420 363 155
Email:

Family Support Co-ordinator

Kylie Bath – 0424 505 833
Email:

HeartKids of SA Services Enquiry Pack

For a free enquiry pack containing information on our services click here.

HeartKids Victoria including Tasmania

Phone: 03 9513 9030
Fax: 03 9345 6001

C/o Cardiology Department

The Royal Children’s Hospital

Flemington Road

PARKVILLE VIC 3052

Web: www.heartkidsvic.org.au

HeartKids Australia

HeartKids Australia Inc.

PO Box 204

WAHROONGA NSW 2076

Email:

For any Vending Machine enquiries contact Lisa White on:

Email:

Please call during work hours or leave a message on our phone line and you will be contacted within 24 hours. Office: 02 9487 8256

Queensland

HeartKids Queensland Inc

Phone: 07 3341 8145

Fax: 07 3341 5460

Post: P.O. Box 118 UNDERWOOD QLD 4119

Email:

Web: heartkidsqld.org.au

New South Wales

HeartKids NSW. Inc.

Phone: 02 9294 0800

Fax: 02 4423 5812

Post: P.O. Box 41 NOWRA NSW. 2541

Email:

Web: heartkidsnsw.org.au

Western Australia

HeartKids W.A. Inc.

Phone: 9340 7996

Fax: 9340 7997

Post: P.O. Box 1554 WEST PERTH W.A. 6872

Email:

Web: heartkidswa.org.au

Email:

Northern Territory

Supported by HeartKids of SA. (please refer to above details)

Merchandise

HeartKids SA offers a limited range of merchandise for sale to members and to the general public.

The range is currently sold out and new range being examined.

Check back soon or email for an udate.

Our Supporters

We would like to acknowledge our national sponsors:

imageimage

Our South Australian Sponosrs:

image

REMAX HILLS AND COUNTRY MT BARKER

image

How to become a Sponsor

As a Charity with both State and National offices we welcome sponsors at both levels. For details on how to become a sponsor at a state level please contact your state office directly. For companies wishing to take on a sponsorship at a national level we offer a number of packages;

Principal Sponsor

This contributes to the core costs of the Charity over a fixed period to advertise your community spirit and commitment to the welfare of our children.

Employee Sponsor

This unique opportunity allows you to employ a HeartKids employee for 6 months at either a state or a national level. As a new national charity this allows us to channel vital resources where they are most needed during our critical start up phase.

Campaign and Event Sponsorship

Through out the year HeartKids holds various campaigns including Stick on a Smile, Gala Balls and other fundraising events. These can be sponsored on either a state or national level.

Equipment or Research Sponsor

With HeartKids making up the majority of admissions into Intensive Care Units around the country, there is always a need for new equipment. At HearKids we can direct your sponsorship dollars directly to the area you would like to contribute. This can range from beds to tv’s to cardiac monitoring equipment. OR if you prefer we can channel your donations specifically into research.

Create your own event at work or your own mother’s group.

There are a number of ways you can raise funds independantly for HeartKids, each state offers their own unique angle on what’s fun to do, or you can simply make up your own.

How to Make a Donation

You can help HeartKids make a difference in the lives of children with heart disease by generously donating. This will continue our vital services of supporting these children and their families as well as raising funds for research and items of need in the Cardiology areas of Children’s Hospitals around Australia.

Donations can be made either online, by printing a form which can be downloaded here or by phoning 0406 165 111.

To make a cash or credit card donation online please click on the button below:


Donate by Volunteering

HeartKids SA offer a wealth of opportunities for volunteers to become involved. From supporting one of our functions to administrative work to help our small team out, all of it is appreciated – whether your involvement is heavy or light, long term or short, we encourage volunteers to contact HeartKids SA on 0406165111 and learn more about us. At the very least, your interest will we hope generate awareness which is sorely needed.

Membership

HeartKids membership is open to:

  • Families with a child who has a congenital heart defect or acquired childhood heart disease. This includes parents, siblings, grandparents etc.
  • Teenagers and Adults with CHD who would like to join a forum for discussion.
  • To any individual or group concerned with the issues of congenital heart defects who have a specific interest in helping raising awareness and funding.
  • To any individual involved in the issues of congenital heart defects and acquired childhood heart disease, be they from a medical background or the political arena.

How To Join

Membership to HeartKids SA is free.

Membership forms can be obtained online (right-click to download).

Membership offers you:

  • A seasonal Newsletter to keep you informed and updated;
  • Family Support Coordinator – present in hospital to offer you support at critical times, and by phone and email as required;
  • Opportunities for your heart child to attend events with other heart children;
  • Opportunities for families to attend events with other families of heart children such as the annual Christmas Picnic

Facts about Childhood Heart Disease

Incidence of Childhood Heart Disease is far greater than most people expect. Although it comes as quite a shock to family and friends alike, an astounding 6 babies each day in Australia are diagnosed with heart disease! Cures remain predominantly unknown and little in general is known about the disease and its causes. Therefore we need your help to assist in addressing this situation

Common known facts about CHD include;

  • Heart defects are present in 1 in 100 babies
  • Heart defects are the most common birth abnormality
  • Heart disease in children is the leading cause of young children death in Australia, accounting for more than 30% of all childhood deaths.
  • Childhood Heart Disease takes more lives than all other childhood diseases combined
  • Nearly twice as many children die each year from congenital heart disease compared with all childhood cancers
  • More than 2015 babies are born in Australia each year with a heart defect
  • Childhood heart disease is no fault of the parents or the child. It is simply a result of the cruel hand of fate
  • The severity of defects in heart children can range from a hole in the heart, to a highly complex combination of conditions
  • Up to 20% of heart defects are gene-linked abnormalities, but for the remaining 80% the cause is largely unknown
  • More than half of these conditions are serious enough to require treatment through medication or surgery – sadly some cannot be repaired
  • Cures of these heart conditions remains unidentified, therefore there is an immense need to develop early intervention strategies to identify and prevent heart disease in children
  • Heart disease is the most common reason for admission of Australian children to intensive care units with more than 1300 being admitted each year
  • The term ‘congenital heart defect’ refers to an abnormality of the heart, which is present at birth. It has nothing to do with diet or obesity
  • Heart valve replacements come in 3 forms: homographs (valves from humans) tissue valves (from cows or pigs) and mechanical man-made valves
  • Some children acquire heart conditions during childhood, eg cardiomyopathy, Kawasaki disease or as a result of rheumatic fever
  • A disproportionate number of indigenous children suffer from acquired heart disease – often as a result of rheumatic fever, which is rampant in many communities
  • Heart Transplants are much more challenging for children as their immune systems are not fully developed
  • The only Paediatric transplant unit in Australia is at the Royal Children’s Hospital, Melbourne
  • In 2007 more than 100 South Australian families travelled to Melbourne for surgery

More than 4 young Australians will die this week as a result of congenital heart disease. Will you help to save them?

Sources:
Australian Institute of Health and Welfare
Australian Bureau of Statistics
American Heart Association

Our partners

coming

Annual Reports

HeartKids Australia’s Annual Report

HeartKidsAnnualReport07.pdf

HeartKids of SA Committe - 2007/08

HeartKids of South Australia Inc is run by a committee elected annually by members at our Annual General Meeting. These roles are purely voluntary and non paying. The committee is made up of parents of HeartKids, individual professionals and other individuals concerned with the high incidence of Congenital Heart Defects, who donate their time and experience to support HeartKids of SA in its mission.

The members of the 2007/08 committee is as follows:

  • Chairman: Matthew Turner
  • Vice-Chairman:
  • Secretary: Cathie Turner
  • Treasurer: Sue Virgili
  • Publicity Officer: Jacqueline Mifsud
  • Members:
    Lee Morgan
    Michael Bails
    Tim Round
    Heather Round
    Carly Nash
    Lisa Guy
    Wendy Duncan (WCH rep)
    Jo Oldman

Our history

Over 25 years ago, ‘HeartKids’ was born of the passion of a few families who had experienced the kaleidoscope of emotions associated with having a child with congenital heart disease.

In the ensuing years state groups established permanent offices, with administration staff available to assist volunteers, while others remain with a committee of devoted individuals.

In 2004 sixteen delegates at the annual conference unanimously supported the proposal that an alliance of state associations be created to form an Australian HeartKids group, and that its name be ‘HeartKids Australia’ (HKA).

An Interim Board was established to support and guide the working party, and oversee Heartkids Australia’s progress.

The journey into 2006 saw HeartKids Australia adopt a constitution, become incorporated, develop its corporate identity, raise funds for research and form alliances with a range of related organisations, sponsors and supporters.

Recent Developments

In June 2007 the appointment of the new full-time Chief Executive Officer was confirmed and the National Office of HeartKids Australia began operating.

In August 2007 a part-time Chief Financial Officer was appointed. This person is contracted to fulfil both HeartKids Australia and State Group work.

At the July 2007 National Conference we confirmed our Vision, Mission and Core Focus areas.

At the National Conference it was agreed that the organisation should review its governance structure to allow for a mix of representational and skill based directors.

These changes were endorsed at a Special General Meeting held on 27 October 2007.

HeartKids is currently experiencing a very exciting phase in its history as it moves to become the ‘public face’ of chidlhood heart disease. If you would like to suport us or be part of this process, please contact HeartKids Australia on 02 9487 8256.

Our Vision and Mission

Our Vision

Embracing the future for HeartKids.

Our Mission

Australia will have a reduced incidence of children with heart disease, a reduced mortality rate in children affected by heart disease and significant support will be provided to HeartKids and their families.

This will be achieved through the development of: Research, Support, Awareness and Advocacy.*

Who we are

HeartKids is unique in that it is the only organisation in Australia solely focussed on all aspects of chidlren’s heart disease. We are a registered Health Charity and have full tax concession status from the ATO. We aim to offer support to HeartKids and to families of children with heart disease, be it congenital (born with) or acquired. We have also partnered with leading cardiologists and researchers and are working to provide funding for them to assist in reducing the incidence of CHD and to improve the mortality rates currently being experienced. We started as voluntary group of parents and individuals dealing with and concerned about the day to day realities of raising and caring for children with cardiac conditions, and sometimes dealing with the loss of a child due to their congenital heart defect. We have grown to an organisation of some strength, with a presence in every state of Australia, as well as a National body – HeartKids Australia.

Our members wish to offer their support to other families who are in crisis, providing opportunities to share common anxieties and challenges. We arrange, where possible, to meet with other families affected by the impact of life with a child with a cardiac condition and to create a ‘network of support’ for all families.

Over the years, HeartKids, with the help of members, sponsors and friends, has been able to help out the children’s hospitals and researchers by way of donations of money, equipment and research grants.

HeartKids has regional representatives who offer their time to arrange coffee mornings and special activities in order to support families with a child with CHD. Telephone support is also offered. Our aim in this area is to ensure that parents aren’t struggling alone. Please contact your State group for support or to join these groups.

HeartKids’ produces a serieis of state based newsletters which update and inform our members on patient progress; special ‘heart family’ activities; government policy information of relevant, upcoming events and much much more. HeartKids newsletters keeps our geographically diverse membership aware and ‘close’.

HeartKids can assist with information about your hospital stay, for example information on available accommodation, meals, and transport and parking and in some cases can assist families financially in these areas. We can also assist with information on the availability of certain hospital services such as social workers, occupational therapists, and speech pathologists.

Most valuable to our families during the crucial time of surgery are our Family Support coordinators. These coordinators are ‘heart mums’ and understand more than most what families are experiencing during the often tension filled hospital stays.

As well as offering support to families, HeartKids aims to increase awareness in the general community and corporate sector about the high incidence of congenital heart defects and its ongoing consequences. Please contact your State group if you are visiting one of the children’s hospitals, or if you would like some support.

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