HeartKids SA NEW PREMISIS

IKEA SUPPORTS AWARENESS MONTH

February is HeartKids Awareness Month

City to Bay Fun Run 2009

On Your Marks For Little Hearts

Sunday Mail City-Bay Fun Run – Sunday 20/09/09

WOW – what an outcome! Thanks again to all our participants, sponsors, people and businesses who have kindly donated money or goods which made the day the success that it was! We have clicked over the $30,000 mark for funds raised so far with more coming through each day still. Our final number of people registering was 580. We hope you will all get involved again next year! Please feel free to email if you have any ideas/feedback to assist with planning for next year.

Sponsorship money offline – what do I do now?

If you have been collecting sponsorship money from friends/families/workplaces find out how to bank the money or send a chq/money order by 25th September – “Information sheet on fundraising offline” City_Bay_SponsorshipDonation_Details.pdf

Thank you to the following corporate sponsors for committing to support HeartKids SA on the day – we truly value everyone’s support:-

Our major sponsor:
IKEA

Our other valuable sponsors:
Money Options
M2 Building Services
National Foods
FTM Shirts
Don KRC (George Weston Foods)
Tip Top Bakeries
Rohde’s Free Range Eggs
Calyx Fresh Foods
Warrin Mining
Spotlight Munno Para
IGA, Colonel Light Gardens

The businesses/people who have donated for the goodie bag giveaways:-
Snap Happy
United Water
The Beachhouse
Bellis Fruit Bars
Xtreme Concrete
Chief Security
Crossfit Training
XXXX GOLD Top Blokes Club
Nutrimetics – Franca Martino
SAFM

Thank you to the following groups/workplaces for registering to participate in support of HeartKids SA already:-

Redbacks / SACA & Graham Manou
Lodge Construction and Building Pty Ltd
AFG
Hickinbotham’s
Money Options
Michelle’s Bootcamp
St Peters College
Crossfit Training Adelaide
Elizabeth Police
XXXX Top Bloke’s Club
Star Operations (SA Police)
Police Academy
SAPOL
Catch Grandad
Coopers Troopers
The Connor Family & Friends
IKEA Staff
The Miles Family
ABC Learning Centre – Blackwood
ABC Learning Centre – Aberfoyle Park
PGFS Pty Ltd
Mason6 Team

Thank you to the following people/groups who have setup their own online fundraising page:-

Thank you to the following people/groups/teams who have joined the http://www.everydayhero.com.au/heartkidssa fundraising team to raise sponsorship:-

Neil Thompson
Prisca Harrison
Lisa Brennan
AFG Team
Bruce Harrison
The Shaw Family
Lindsay, Glen & Evie-Bella
Kerry Southwell
David & Gisela Obst
Deb, Elli, Annie & Nathan Panagis
Crossfit Training
PGFS Team
Darren, Kimberley, Oliver & Jessica Davey
Bronwyn Digance
Warwick Armstrong
Dan Webb
Tracey Zilm

We truly appreciate the valuable support and help from the volunteers offering their time to help out as well as those helping with valuable contacts in the lead up and on the day itself:-

Kiwani’s
Redbacks/SACA
Jacob Holmes (Adelaide 36ers)
Alex & Louisa Morrison
Bruce Harrison & Chris Howell
Andrew Kerr
Sally Nicholson
Michelle Stollznow
Lindsay Taylor
Desiree Ruby
Dale & Judy Fitzpatrick
Mat & Sarah Harrison
Lisa Brennan
Lisa Drage
Sheree Forrest
Lisa Guy
Warwick Armstrong
Stuart Martin & Karen Horsell
Jill, Derek & Callum McNair
Paul White
Cathie & Matt Turner
Ben Spencer & Bill Kelsey
Wendy McDonald
Jody & Dee from the Money Options office for handing out the goodie bags!
and…
Prisca’s very patient husband, David and their kids while she volunteered her time to work on the City to Bay campaign…

Cuppa for Kids

Please visit the following website http://www.cuppaforkids.org.au to register and learn more about this program. On the site you will find all sorts of resources along with numerous celebrities who have endorsed the campaign and provided their favourite recipe for you to taste. Dilmah Australia has provided the tea samples for this campaign which are to be sent out in the registration packs.

Children with Heart Conditions - online booklet

A great resource for parents of a child with a heart condition

Children with a Heart Condition – online booklet

2009 HeartKids Teen Camp

Registration is now open for the 2009 Teen Camp.
FREE for all HeartKids. For more information and to download a registration form click here:
2009 HeartKids Teen Camp

HeartKids Events

Teen Camp 2010

The HeartKids Teen Camp is happening in January 2010.

Coffee Mornings with our Family Support Coordinator

Every Tuesday
10am – 12am at the Women’s & Children’s Hospital fantastic Play Deck!
Contact Kylie Bath on 0424-505833

HeartKids Northern Playgroup Prospect

Every Wednesday 10am – 12pm
Prospect Road, Prospect
Contact Natalie on 0417-565535
Contact Cathie on 0406-165111

HeartKids Southern Playgroup Marion

Every Tuesday 10am – 12pm
Marion Rd, Mitchell Park
There’s a great room with play equipment, an outdoor enclosed toddler playground and a cafe!
Contact Lisa Guy on 0419802502 or 8298-6965

February 2010 – HeartKids Awareness Month

During the month of February we will be organising a number of “awareness” activities to help promote Childhood Heart Disease and HeartKids SA. If your business would like to get involved in some way – please email for suggestions.

City to Bay Fun Run 2009

This successful day was on 20th September 2009 with over 570 participants walking and running for HeartKids SA and raising $40,000. Please email if you want more information for next year. A heartfelt thanks to everyone who got involved and participated.

Heart Conditions - Detailed information for parents

Heart Disease & Pregnancy

Pregnancy is a time of increased risk, especially for women with a history of heart disease. The risks are manageable in most cases. Women with a history of heart disease need careful and more frequent medical observation during pregnancy. Because the risk varies for each woman, it is essential that you discuss your own situation with your doctor before getting pregnant. If you become unexpectedly pregnant, you should notify your doctor without delay so that the remainder of the pregnancy can be carefully planned and managed.

HeartKids Australia CEO wins National Award

These Awards are presented to outstanding leaders in Australia’s Not For Profit (NFP) and charitable sectors, recognising service excellence, enhanced organisational image and partnership success.

Neil started as HeartKids Australia’s first national CEO in June 2007 and has quickly brought focus and rigour to the NFP organisation, which was previously a loose collection of state-based bodies born out of the passion of a few families coping with all the emotions associated with having a child with congenital heart disease.

The Award was presented at a lavish ceremony at the National Gallery in Melbourne. Whilst the award acknowledges personal achievement, Neil prefers to see it as a great opportunity to promote his charity. With congenital heart disease being the most common birth abnormality and the greatest killer of children under the age of 5, Neil believes this award provides his young charity with a great opportunity to raise awareness of the alarming facts.

Most people I speak to are unaware of these facts, being more aware of the needs of cancer and adult coronary heart disease because of the financial capacity of the big charities to promote their cause. Each day 6 children are born with heart disease, over 2000 a year. These children fill half the beds in all children’s Intensive Care Units. Sadly around 250 of these children still succumb to the disease each year.

Neil says one of the great joys of his job is speaking to community groups and individuals about the needs of childhood heart disease.

HeartKids works to assist children and families who have been affected by Childhood Heart Disease and with corporate support is now funding much needed research in the hope less children will be born with these diseases and that mortality rates will decrease.

Dr. Gavin Wheaton HKSA’s First Patron

Extract from Chairman’s Report from 2008 AGM

It has been a very busy year for HeartKids SA and our achievements for 2007-2008 include;
• A fantastic turnout to the Annual Christmas Picnic, held in November last year at St Andrews School in Walkerville.
• Appointment of Kylie Bath into the Family Support Coordinator position as our inaugural employee, who has done a fantastic job of supporting our families both in and out of the hospital.
• Appointment of Kerry Southwell into the State Manager position, in which she has done a fantastic job in not only raising vital funds for the organisation, but raising awareness for children and our profile.
• Creation of the HeartKids SA Financial Assistance Fund to help ease the financial burden experienced by families who must travel to Adelaide or Melbourne for treatment. At this early stage this fund will be used to help subsidise some of the accommodation costs of these travelling families, but in the future we hope to grow the scope of this fund to cover many of the other cost that families must bear whilst their children undergo treatment.
• Launch of a new partnership with IKEA Adelaide who are hoping to raise $10,000 to assist families with accommodation costs through the HeartKids SA Financial Assistance Fund.
• The formation of an Events and Fundraising Sub-committee that were able to raise approx $30,000 over the last 12 months from a number of events that included;
o A Quiz Night, that was attended by over 150 people,
o A movie night to launch our new partnership with IKEA
o Various fundraising BBQs across Adelaide
o City-Bay Fun Run, with 169 participants sporting HeartKids t-shirts and caps that were proudly sponsored by IKEA.
• The coordination and execution of an intensive 3 day media campaign with HeartKids Victoria to advocate for the plight of the many families that were having their surgery cancelled due to the shortage of services at the Royal Children’s Hospital in Melbourne. I commend Kerry on the fantastic job she did in organising the campaign at such short notice, and I thank Lisa Guy and her family for allowing us to share her story as part of that campaign.
• Last but by no means least, the appointment of our inaugural Patron Dr Gavin Wheaton to whom we will be making a presentation a little later.

(Matthew Turner, Dr. Gavin Wheaton and guest speaker at AGM, Christie Anthoney)
Going forward HeartKids SA needs to work on the following to ensure that we are able to sustain the fantastic growth of the last 12 months;
• Revision of our strategic plan to account for our growth over the last 12 months and our planned growth for the coming year,
• The development of a Support Plan that not only outlines our support programs as of today, but what we envisage they will be in five years time,
• The expansion of our support services, to ensure that the same level of support is available to all families at all times in both metropolitan and rural areas,
• Build on the Financial Support Fund to enable its expansion to cover more than just the accommodation costs incurred by families that need to travel for treatment,
• Build on the fundraising success of the past 12 months, to enable the organisation to fund the planned growth for the coming year
• Review and update our Constitution to enable us to recruit people from outside our organisation to help us manage and grow the organisation.

City to Bay a Huge Success for HKSA

A huge THANK YOU to all of our wonderful HeartKids of SA City Bay Participants!!

I would like to acknowledge the Events and Fundraising Sub-Committee! Great job guys! Everyone loved the bags, shirts and caps! The balloons brought us lots of attention (which was the aim of the day!) and thanks to IKEA for their sponsorship of the shirts and caps too. We were very easy to spot in the crowd and it all contributed to a very successful day of ‘awareness raising’!

Also, many thanks to those who donated, made a fundraising web page, or gathered sponsorship from family and friends. As I send this message the online fundraising total stands at $15,179.65 – Amazing!! And that doesn’t include the cash donations yet to be totalled! And there are still donations coming in via http://www.heartkidssa.org.au and http://www.everydayhero.com.au/HeartKids_SA as well.

We had a total of 161 participants who entered the event for us.
Next year we aim to make it 300! A sea of people in our shirts and caps and double the balloons!

A great job by all!
A great day had by all!

Cathie Turner
Secretary HKSA

HeartKids Christmas Cards

Lee Running the City Bay for HeartKids

The Stirling father of three, 51, has entered the Sunday Mail City-Bay Fun Run an impressive 33 times and cites his son’s heart condition, and other children with heart disease, as his ultimate inspiration. “If you are fit and healthy you’ve got to appreciate that because there are some people that are unable to do the full exercise,’‘ he said. His son Glynn, 19, has undergone open heart surgery three times since he was born and is currently recovering from a recent 7-hour operation.
As the board director of HeatKids Australia, Mr Morgan will join 20 to 50 employees, families and supporters at this year’s event. By entering a large team for the September 21 fun run, Mr Morgan hopes to raise awareness about childhood heart disease, a condition that is considered the greatest killer of children under five in Australia. Funds raised from their run will assist the support for families of Heart Children who are often unable or find it difficult to run themselves. “What we’re doing as a team is we’re running for kids who can’t run,’‘ he said. However, the Sunday Mail City-Bay Fun Run wasn’t always all about the kids for Mr Morgan, who has raced in every event since 1974 expect one. “I was pretty competitive in the early days,’‘ he said. “I used to take it super seriously and over the years I’ve just kept it up for myself and for the kids.’‘
His fastest time was 41.01minutes in 1986 when he finished 38th, followed by more than 10,000 other runners. Last year he made his best time in 10 years, which he says is thanks to morning routine. “The only way to keep fit is to have exercise every day,’‘ he said. ``I’ve only missed eight mornings so far this year.’‘ And with no plans to end his Sunday Mail City-Bay Fun Run commitment, Mr Morgan said he will only give up ``when my knees give out on me’‘.
Race director Joe Stevens praised the Sunday Mail City-Bay Fun Run for promoting the benefits of health and fitness. “Our aims are, of course, to encourage people to get out there for several reasons,’‘ he said. “One to improve health and fitness and to help establish a pattern of physical exercise with the City-Bay becoming the ultimate goal.’‘
The Sunday Mail City-Bay Fun Run registrations were launched last week with a record number of feet heading in the right direction. “We’re looking for a record year this year, we had 23,123 entries last year and we want to pass the record for participants,’‘ Mr Stevens said. So far entries have exceeded last year’s number with substantial numbers already entered in the first week.
So why don’t you join them – the entry form is on Page 62 or you can find it by logging on to adelaidenow.com.au
LEE Morgan might be a bit slower on the track these days but his motivation continues to out-run his fellow participants.

City Bay Fun Run

- Sunday 21st September

1) Participants and observers in general (anybody!) will be able to support HeartKids by accessing http://www.everydayhero.com.au/HeartKids_SA to start pledging donations to us for the City Bay.

2) Anybody participating can make their own ‘HERO’ page on http://www.everydayhero.com.au and start getting their friends etc. to sponsor them for the run with the proceeds coming to HeartKids SA.

3) Walkers can join a group of HeartKids parents and friends who will be doing the 3km walk as a group as an awareness activity. Contact HeartKids on 0406 165 111 or email to register your interest.

Check out http://www.city-bay.org.au for more information about the City Bay Fun Run.

Be a Hero for HeartKids in 2008!

IKEA MOVIE NIGHT

IKEA Movie Night

IKEA would like to hold a Movie Night for HeartKids of SA families and their own staff. This evening will also be the launch of the partnership between IKEA and HeartKids of SA. Come and join us to see:
‘GET SMART’
on Sunday 29th June
at Greater Union Cinema on Hindley Street, City.

Cost: FREE to all HeartKids of SA Members and their IMMEDIATE family. $10 per person for friends and extended family. Please see attached flyer for details. I hope to see lots of HKSA members there. It should be a great night, and the first of hopefully many generous occasions hosted for our families by IKEA.

Latest Update - HKSA’s Heather Round crowned Australia’s ‘Mother of the Year’

MOTHER-of-six Heather Round not only looks after her own children but also helps the families of children with congenital heart disease.

On Thursday 8 May, at a lavish presentation in Sydney, Mrs Round, 35, was named Barnardos’ Australian Mother of the Year. In 2002, she lost her son Max, a twin to Henry, 5, to Hypoplastic Left Heart Syndrome when he was just 13 days old. Children with the disease typically have to be treated in Melbourne. Mrs Round decided to set up an accommodation support network, Max’s Place, to support families facing the financial burden of living for up to six months in Melbourne. “We would have loved to be able to cure congenital heart failure in kids but, because we can’t do that, we thought we would help the families,” she said.
“She’s Wonderwoman,” Mr Round said. Tim said Heather was a devoted mother. “Her life is about our kids and everything else is second to that,” he said. She was nominated by her mother Judith Parkinson who said Heather always had put others first. “I think she’s great and she probably should spend more time on herself, but the kids always come first,” Mrs Parkinson said.

Photo courtesy of The Advertiser and photographer Dean Martin

Max’s Place

Max’s place are a group of three units that Heather & Tim Round have purchased in dedication to the memory of their son Max – these units are for the use of families that have to relocate to Melbourne for life giving surgery for CHD children. Max’s Place is a one bedroom apartment, with a kitchen, living and bathroom, which is located directly opposite the Royal Children’s Hospital.

The apartments are located in the Royal Park Towers and has a security entrance. They also have car parking spaces for the families staying in the apartments to use.

http://www.heartsofhope.iinet.net.au/homepage/max.html

Family Support Coordinator - Kylie Bath

I am a Pre-school/ Junior Primary teacher and most recently have been providing classroom support for children with special needs, their teachers, parents and carers. I have watched HeartKids change and grow over the last few years and am very excited to now be involved in such a special way. My 5 yr. old son Cameron is a HeartKid, has had surgery twice and is now fit and healthy (most of the time) and has just recently began school.

I will be visiting the hospital during out-patient clinics and would love to see any of you who may be there, staying on the wards, or in ICU at any time. As the FSC, I also organise coffee mornings once a fortnight at the WCH on the Play Deck, level 1. Please feel free to join us for a relaxing time with myself and other HeartKid families. Hopefully I will soon become a familiar face for you to catch up with, have a chat, a coffee and to provide support and friendship for Heartkids and their families
.

Innaugral State Manager Announced for HeartKids of SA

My name is Kerry Southwell and I am thrilled to be part of the HeartKids of SA family. I have worked in the non-profit sector in Fundraising and Marketing for the last 15 years, predominantly working for children and adults with intellectual disabilities.

I feel passionate about HeartKids of SA as I believe it is the ‘voice’ of our gorgeous babies and children with heart disease. Therefore, my vision for HeartKids of SA is to secure funding so that we may offer the support mechanisms needed for our babies, children and their families.

I want to ensure that HeartKids of SA programs are strong and delivered where most required. Also, I want to ensure that the needs of each family member who supports a child with heart diseases’needs are met. I would like to see more support for our families who live in rural areas as currently, about 25% of HeartKids of SA members live in country South Australia. Other areas that will be addressed are: a) more support for our teenagers b) obtain funding for more support to our babies, children and families who have to travel to Melbourne. (HeartKids WA attract annual state government funding initially for this reason.) I also plan to implement a media campaign and to visit service clubs and business networks to assist in lifting the profile of HeartKids of SA.

Our hard working Fundraising Committee is organising a Quiz Night in May, so I look forward to meeting a lot of you there!

My door is always open and I’d love to hear from you. My Mobile is 0420 363 155 or email

The Max Round Memorial Quiz Night

The Max Round Memorial Quiz Night is only $15 per head and has tables of 10, lots of prizes to be won, silent auction items, fun and games!
So organise a babysitter, pack some wine and nibbles, grab 9 friends (or join a table with other HKSA members) and come along to support HeartKids of SA.

The Max Round Memorial Trophy will be etched with the winning tables’ Team Name and put on display in the WCH Cardiology Department.

Call Cathie Turner (HKSA Secretary) on 0406 165 111 to book a table (Payment will be arranged on confirmation and seats are limited, so call now!)

ANNUAL CHARITY ZIPPA DAY TO PROMOTE CHILDHOOD HEART DISEASE

The Zippa Day’s main aim is to promote awareness of childhood heart
disease which is the greatest killer of children under the age of 5 in Australia.

See the media release here

Busking to the Beat

HeartKids is running a new school program called ‘Busking To The Beat’. Our aim is to raise awareness of the high incedence of Childhood Heart Disease (CHD) as well as raising much needed funds. Will you join us in the fun?

Click here for more information.