First Aid Sessions for HeartKid families
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Tiny Tickers Ball
The 2012 Tiny Tickers Ball will be held on Saturday May 5th at the Adelaide Entertainment Centre.
If you would like to attend or support this event please visit our website http://www.tinytickersball.org.au/home.html
We look forward to another wonderful night, raising much needed funds for HeartKids SA.
HeartKids SA Winter 2010 Newsletter
KinderChefs Create Coconut Craze!!!
KinderChefs visited HeartKids SA at their new office and whipped up a Coconut Weetbix storm!!!
HeartKids and their siblings got their hands right into the mix of things and made their own cocnut weetbix balls for their ‘Sometimes’ food special treat!! They also read a great story about a giant cake and even held a coconut, tasted the milk from it and chopped it open!…. eventually!!! Good thing KinderChefs brought a hammer and a drill with them!!!
For more information about KinderChefs and their pre and primary school cooking lessons, please go to http://www.kinderchefs.com.au or look up their Facebook page! http://www.facebook.com/group.php?gid=307724207619&ref=ts
HeartKids SA News Autumn 2010
HeartKids SA Rose Park Premises
HeartKids SA celebrated the grand opening of their Rose Park office on 11th February 2010. HeartKids SA is extremely grateful to Home Support Services who very generously donated the use of the office and board room. IKEA kindly donated the furniture for the HeartKids office. Thank you!!
February is HeartKids Awareness Month
Cuppa for HeartKids
Please visit the following website http://www.cuppaforheartkids.org.au to register and learn more about this program. On the site you will find all sorts of resources along with numerous celebrities who have endorsed the campaign and provided their favourite recipe for you to taste. Dilmah Australia has provided the tea samples for this campaign which are to be sent out in the registration packs.
http://www.cuppaforheartkids.org.au
Children with Heart Conditions - online booklet
A great resource for parents of a child with a heart condition
Children with a Heart Condition – online booklet
2009 HeartKids Teen Camp
Registration is now open for the 2009 Teen Camp.
FREE for all HeartKids. For more information and to download a registration form click here:
2009 HeartKids Teen Camp
HeartKids Events
HeartKids Awareness Month- February 2012
“Six babies are being diagnosed with Childhood Heart Disease every day”
February is HeartKids Awareness Month, when Australians will be encouraged to support Australia’s little battlers – those struggling with Childhood Heart Disease (CHD).
The month of February brings Valentine’s Day, why not celebrate by helping a heart in need? Here are some ways to get involved and support HeartKids in February!
Capture a Heart on Facebook
When you see a heart in your everyday life, enter the photo via the HeartKids Facebook page and you’ll be in the running to win some fantastic prizes. The ‘Capture a Heart’ competition runs from the 23rd January 2012 until the end of February go to https://www.facebook.com/HeartkidsAustralia for more information.
Rundle Mall- Awareness Display
Help us raise awareness!
On Tuesday February 14th (Valentine’s Day) HeartKids SA staff and Volunteers will be hosting a display for HeartKids South Australia in Rundle Mall across from The Myer Centre. Please pop in and see us!
IKEA Ball Party!
HeartKids Staff and Volunteers will be at IKEA on Saturday February 25th! Please come back and check this page for further updates!
Buy your Valentine’s Day Flowers and Make a difference!
One of Adelaide’s most prestigious florist’s Alyssiums on Pirie are showing their support to HeartKids SA by donating $5.00 for every dozen roses purchased. Place your order or phone 08 8223 4033!
Wall of Hearts
During the month of February, customers can dedicate a heart at participating Retail Food Group outlets, such as Donut King, Brumby’s and Michele’s Patisserie. Write a message of love and support to those suffering with CHD and stick it on the ‘Wall of Hearts.’ A collection of these heart messages will be sent to CHD sufferers in hospitals Australia-wide. Participating outlets will also promote HeartKids Combo’s throughout the month of February: Michele’s Patisserie will offer a heart-shaped lamington and coffee; Donut King will offer heart-shaped donuts, while Brumby’s will offer special Gingerbread Men. A percentage of all sales from these combos will be donated to HeartKids. For a list of participating stores go to http://www.heartkidsaustralia.org.au .
Golden Heart Campaign
Or simply give the gift of a healthy heart this Valentine’s Day by visiting the HeartKids website to make a donation. http://www.heartkids.org.au
Heartkids at The Whimsical Markets
HeartKids are excited to announce we have been chosen as the charity of choice for the Whimsical MarketsThe Whimsical Markets are a great family market with a focus on baby unique band childrens items.
Heartids SA will receive all entry proceeds from this market- Gold Coin Donation. Please come along on January 29th.
Market Venue:
Playford Civic Centre
Playford Boulevard Elizabeth
10-3 pm
Please join their facebook page http://www.facebook.com/#!/whimsicalmarkets
2012 Events Committee
Always wondered how you can give back to HeartKids or make a real difference?
Please consider joining our events committee. Oue events committee organise our support events for HeartKids, this included the annual Christmas Picnic.
If you would like to find out more please email for more information.
Next Meeting Date:
Monday January 23rd 6.30pm
HeartKids SA Office- 6 Watson Avenue Rose Park
Please confirm your attendace ( for catering purposes) to or phone 08 8332 2901.
City to Bay Fun Run – 18th September 2011
This year’s City to Bay was another huge success with close to 900 particpants! Sincere thanks to everyone that participated on behalf of HeartKids SA- Your support will ensure we can continue to provide support to many families across South Australia.
To date, HKSA particpants have raised more than $45,000 with more expected to come!
We would like to sincerely thank IKEA for their amazing support and our incrediblel team of volunteers for all of their hard work before and on the day of the event.
We look forward to your continued support next year!
Cuppa for HeartKids
Host a Cuppa for HeartKids to help raise awareness of HeartKids and CHD.
Cuppa for HeartKids runs throughout August & September each year.
For details, please email or phone 08 8332 2901
First Aid Training Sessions
HeartKids SA are holding first aid training sessions, run by St Johns, for immediate family members with a child with heart disease or those expecting a child with heart disease (you must be a member of HeartKids SA – membership is FREE).
The sessions are at no cost to members of HeartKids SA.
Please click here for more details…
HeartKids SA Playgroups
Held during school terms…
Every Wednesday 10am – 12pm
Playgroup SA, 91 Prospect Road, Prospect
Every Tuesday 10am – 12pm
Corner Marion Rd & Alawoona Ave, Mitchell Park
Every Tuesday 1pm – 3pm
Hallett Cove Baptist Church, 1 Ramrod Avenue, Hallett Cove
For more information please call Deb (Family Support Coordinator) on 0451 126 766
Every Wednesday 12.45pm – 2.30pm
Loveday Street, Whyalla
For more information please call Nicole (Regional Family Support Coordinator) on 0450 100 433
HeartKids SA – Whyalla Kindergym
Held on the first Sunday of every month 1.30pm – 3.30pm
For details, please phone Nicole 0450 100 433
Darwin Support Group
Held on the first Friday of every month 9.30am – 11.30am
For details, please phone Jess 0407 973 318
Remembering our Heart Angels
An invitation to the families of our treasured Heart Angels. Please join us in remembering these precious children and celebrate their lives together. Morning tea is held on the first Wednesday of each month.
For details, please phone Deb 0451 126 766
Teen Camp – held in January each year
After this year’s incredibly successful Teen Camp we anticipate demand for places at next year’s camp to be strong.
The 2011 Camp was held on Milson Island in Sydney – an extremely well appointed camp in an idyllic environment located on the Hawkesbury River.
HeartKids Awareness Month – Held in February each year
During the month of February we organise a number of “awareness” activities to help promote Childhood Heart Disease and HeartKids SA. If your business would like to get involved in some way – please email for suggestions.
Past Events – 2011
Tiny Tickers Ball
The first ever HKSA Tiny Tickers Ball was held in February 2011. 300 people attended and celebrated being young at heart whilst also raising $60,000 for HeartKids SA.
To register your interest in the 2012 Tiny Tickers Ball, please email or phone 08 8332 2901.
For more details, please click here.
Inaugural Charity Comedy Gala
Monday 21st February 2011
IKEA Ball Room Party
Saturday 5th March 2011
School Holiday Fun at The Beachouse
Monday 18th April 2011 saw a wonderful gathering of over 70 children and their parents for some fun at The Beachouse at Glenelg. Our families enjoyed an hour of climbing, sliding, boating, riding and more, followed by a relaxing barbeque on the lawns with a visit from Patch the Lion. It was great to see so many HeartKid families together to enjoy the start of the school holidays and Easter. A special thank you to all of the HKSA and Kiwanis volunteers that were involved in the day.
Mother’s Breakfast
We had 40 seats available for this year’s Mother’s Breakfast and were astounded how quickly those seats filled! We are looking forward to celebrating the special bond of mothers of heart kids and angels and hope that in 2012 we will be able to share this with even more people.
GLOW DISCO!!
HeartKids SA held a Glow Disco for HeartKids, their siblings and friends at Klemzig on 15th July 2011. Over 40 children attended the school holiday event. Special thanks to Footsteps Dance Company, GAZA Football Club and everyone who’s time & generosity went into this fun event for our kids!
HeartKids SA Newsletters
HeartKids SA News – 2012 – Volume 1
HeartKids SA News – Spring 2011
HeartKids SA News – Winter 2011
HeartKids SA News – Autumn 2011
HeartKids SA News – Summer 2010/2011
HeartKids SA News – Spring 2010
HeartKids SA News – Winter 2010
HeartKids SA News – Autumn 2010
HeartKids SA News – Summer 2010
HeartKids SA News – Winter 2009
HeartKids SA News – Autumn 2009
HeartKids SA News – Summer 2009
HeartKids News – Spring 2008
HeartKids News – Winter 2008
HeartKids News – Autumn 2008
HeartKids News – Summer 2007
HeartKids News – Spring 2007
HeartKids News – Winter 2007
HeartKids News – Autumn 2007
For the latest day-to-day news, please join us on Facebook…
HeartKids of South Australia Inc. | HeartKids SA
Cuppa For Kids 2010 Launched at Government House, Canberra
New Administrative Coordinator Position at HKSA
Graham Manou’s “Tour de Heart” - GET INVOLVED!
Heart Conditions - Detailed information for parents
Heart Disease & Pregnancy
Pregnancy is a time of increased risk, especially for women with a history of heart disease. The risks are manageable in most cases. Women with a history of heart disease need careful and more frequent medical observation during pregnancy. Because the risk varies for each woman, it is essential that you discuss your own situation with your doctor before getting pregnant. If you become unexpectedly pregnant, you should notify your doctor without delay so that the remainder of the pregnancy can be carefully planned and managed.
HeartKids Australia CEO wins National Award
These Awards are presented to outstanding leaders in Australia’s Not For Profit (NFP) and charitable sectors, recognising service excellence, enhanced organisational image and partnership success.
Neil started as HeartKids Australia’s first national CEO in June 2007 and has quickly brought focus and rigour to the NFP organisation, which was previously a loose collection of state-based bodies born out of the passion of a few families coping with all the emotions associated with having a child with congenital heart disease.
The Award was presented at a lavish ceremony at the National Gallery in Melbourne. Whilst the award acknowledges personal achievement, Neil prefers to see it as a great opportunity to promote his charity. With congenital heart disease being the most common birth abnormality and the greatest killer of children under the age of 5, Neil believes this award provides his young charity with a great opportunity to raise awareness of the alarming facts.
Most people I speak to are unaware of these facts, being more aware of the needs of cancer and adult coronary heart disease because of the financial capacity of the big charities to promote their cause. Each day 6 children are born with heart disease, over 2000 a year. These children fill half the beds in all children’s Intensive Care Units. Sadly around 250 of these children still succumb to the disease each year.
Neil says one of the great joys of his job is speaking to community groups and individuals about the needs of childhood heart disease.
HeartKids works to assist children and families who have been affected by Childhood Heart Disease and with corporate support is now funding much needed research in the hope less children will be born with these diseases and that mortality rates will decrease.
Dr. Gavin Wheaton HKSA’s First Patron
Extract from Chairman’s Report from 2008 AGM
It has been a very busy year for HeartKids SA and our achievements for 2007-2008 include;
• A fantastic turnout to the Annual Christmas Picnic, held in November last year at St Andrews School in Walkerville.
• Appointment of Kylie Bath into the Family Support Coordinator position as our inaugural employee, who has done a fantastic job of supporting our families both in and out of the hospital.
• Appointment of Kerry Southwell into the State Manager position, in which she has done a fantastic job in not only raising vital funds for the organisation, but raising awareness for children and our profile.
• Creation of the HeartKids SA Financial Assistance Fund to help ease the financial burden experienced by families who must travel to Adelaide or Melbourne for treatment. At this early stage this fund will be used to help subsidise some of the accommodation costs of these travelling families, but in the future we hope to grow the scope of this fund to cover many of the other cost that families must bear whilst their children undergo treatment.
• Launch of a new partnership with IKEA Adelaide who are hoping to raise $10,000 to assist families with accommodation costs through the HeartKids SA Financial Assistance Fund.
• The formation of an Events and Fundraising Sub-committee that were able to raise approx $30,000 over the last 12 months from a number of events that included;
o A Quiz Night, that was attended by over 150 people,
o A movie night to launch our new partnership with IKEA
o Various fundraising BBQs across Adelaide
o City-Bay Fun Run, with 169 participants sporting HeartKids t-shirts and caps that were proudly sponsored by IKEA.
• The coordination and execution of an intensive 3 day media campaign with HeartKids Victoria to advocate for the plight of the many families that were having their surgery cancelled due to the shortage of services at the Royal Children’s Hospital in Melbourne. I commend Kerry on the fantastic job she did in organising the campaign at such short notice, and I thank Lisa Guy and her family for allowing us to share her story as part of that campaign.
• Last but by no means least, the appointment of our inaugural Patron Dr Gavin Wheaton to whom we will be making a presentation a little later.
(Matthew Turner, Dr. Gavin Wheaton and guest speaker at AGM, Christie Anthoney)
Going forward HeartKids SA needs to work on the following to ensure that we are able to sustain the fantastic growth of the last 12 months;
• Revision of our strategic plan to account for our growth over the last 12 months and our planned growth for the coming year,
• The development of a Support Plan that not only outlines our support programs as of today, but what we envisage they will be in five years time,
• The expansion of our support services, to ensure that the same level of support is available to all families at all times in both metropolitan and rural areas,
• Build on the Financial Support Fund to enable its expansion to cover more than just the accommodation costs incurred by families that need to travel for treatment,
• Build on the fundraising success of the past 12 months, to enable the organisation to fund the planned growth for the coming year
• Review and update our Constitution to enable us to recruit people from outside our organisation to help us manage and grow the organisation.
City to Bay a Huge Success for HKSA
A huge THANK YOU to all of our wonderful HeartKids of SA City Bay Participants!!
I would like to acknowledge the Events and Fundraising Sub-Committee! Great job guys! Everyone loved the bags, shirts and caps! The balloons brought us lots of attention (which was the aim of the day!) and thanks to IKEA for their sponsorship of the shirts and caps too. We were very easy to spot in the crowd and it all contributed to a very successful day of ‘awareness raising’!
Also, many thanks to those who donated, made a fundraising web page, or gathered sponsorship from family and friends. As I send this message the online fundraising total stands at $15,179.65 – Amazing!! And that doesn’t include the cash donations yet to be totalled! And there are still donations coming in via http://www.heartkidssa.org.au and http://www.everydayhero.com.au/HeartKids_SA as well.
We had a total of 161 participants who entered the event for us.
Next year we aim to make it 300! A sea of people in our shirts and caps and double the balloons!
A great job by all!
A great day had by all!
Cathie Turner
Secretary HKSA
HeartKids Christmas Cards
Lee Running the City Bay for HeartKids
The Stirling father of three, 51, has entered the Sunday Mail City-Bay Fun Run an impressive 33 times and cites his son’s heart condition, and other children with heart disease, as his ultimate inspiration. “If you are fit and healthy you’ve got to appreciate that because there are some people that are unable to do the full exercise,’‘ he said. His son Glynn, 19, has undergone open heart surgery three times since he was born and is currently recovering from a recent 7-hour operation.
As the board director of HeatKids Australia, Mr Morgan will join 20 to 50 employees, families and supporters at this year’s event. By entering a large team for the September 21 fun run, Mr Morgan hopes to raise awareness about childhood heart disease, a condition that is considered the greatest killer of children under five in Australia. Funds raised from their run will assist the support for families of Heart Children who are often unable or find it difficult to run themselves. “What we’re doing as a team is we’re running for kids who can’t run,’‘ he said. However, the Sunday Mail City-Bay Fun Run wasn’t always all about the kids for Mr Morgan, who has raced in every event since 1974 expect one. “I was pretty competitive in the early days,’‘ he said. “I used to take it super seriously and over the years I’ve just kept it up for myself and for the kids.’‘
His fastest time was 41.01minutes in 1986 when he finished 38th, followed by more than 10,000 other runners. Last year he made his best time in 10 years, which he says is thanks to morning routine. “The only way to keep fit is to have exercise every day,’‘ he said. ``I’ve only missed eight mornings so far this year.’‘ And with no plans to end his Sunday Mail City-Bay Fun Run commitment, Mr Morgan said he will only give up ``when my knees give out on me’‘.
Race director Joe Stevens praised the Sunday Mail City-Bay Fun Run for promoting the benefits of health and fitness. “Our aims are, of course, to encourage people to get out there for several reasons,’‘ he said. “One to improve health and fitness and to help establish a pattern of physical exercise with the City-Bay becoming the ultimate goal.’‘
The Sunday Mail City-Bay Fun Run registrations were launched last week with a record number of feet heading in the right direction. “We’re looking for a record year this year, we had 23,123 entries last year and we want to pass the record for participants,’‘ Mr Stevens said. So far entries have exceeded last year’s number with substantial numbers already entered in the first week.
So why don’t you join them – the entry form is on Page 62 or you can find it by logging on to adelaidenow.com.au
LEE Morgan might be a bit slower on the track these days but his motivation continues to out-run his fellow participants.
City Bay Fun Run
- Sunday 21st September
1) Participants and observers in general (anybody!) will be able to support HeartKids by accessing http://www.everydayhero.com.au/HeartKids_SA to start pledging donations to us for the City Bay.
2) Anybody participating can make their own ‘HERO’ page on http://www.everydayhero.com.au and start getting their friends etc. to sponsor them for the run with the proceeds coming to HeartKids SA.
3) Walkers can join a group of HeartKids parents and friends who will be doing the 3km walk as a group as an awareness activity. Contact HeartKids on 0406 165 111 or email to register your interest.
Check out http://www.city-bay.org.au for more information about the City Bay Fun Run.
Be a Hero for HeartKids in 2008!
Latest Update - HKSA’s Heather Round crowned Australia’s ‘Mother of the Year’
MOTHER-of-six Heather Round not only looks after her own children but also helps the families of children with congenital heart disease.
On Thursday 8 May, at a lavish presentation in Sydney, Mrs Round, 35, was named Barnardos’ Australian Mother of the Year. In 2002, she lost her son Max, a twin to Henry, 5, to Hypoplastic Left Heart Syndrome when he was just 13 days old. Children with the disease typically have to be treated in Melbourne. Mrs Round decided to set up an accommodation support network, Max’s Place, to support families facing the financial burden of living for up to six months in Melbourne. “We would have loved to be able to cure congenital heart failure in kids but, because we can’t do that, we thought we would help the families,” she said.
“She’s Wonderwoman,” Mr Round said. Tim said Heather was a devoted mother. “Her life is about our kids and everything else is second to that,” he said. She was nominated by her mother Judith Parkinson who said Heather always had put others first. “I think she’s great and she probably should spend more time on herself, but the kids always come first,” Mrs Parkinson said.
Photo courtesy of The Advertiser and photographer Dean Martin
Max’s Place
Max’s place are a group of three units that Heather & Tim Round have purchased in dedication to the memory of their son Max – these units are for the use of families that have to relocate to Melbourne for life giving surgery for CHD children. Max’s Place is a one bedroom apartment, with a kitchen, living and bathroom, which is located directly opposite the Royal Children’s Hospital.
The apartments are located in the Royal Park Towers and has a security entrance. They also have car parking spaces for the families staying in the apartments to use.
http://www.heartsofhope.iinet.net.au/homepage/max.html
Family Support Coordinator - Kylie Bath
I am a Pre-school/ Junior Primary teacher and most recently have been providing classroom support for children with special needs, their teachers, parents and carers. I have watched HeartKids change and grow over the last few years and am very excited to now be involved in such a special way. My 5 yr. old son Cameron is a HeartKid, has had surgery twice and is now fit and healthy (most of the time) and has just recently began school.
I will be visiting the hospital during out-patient clinics and would love to see any of you who may be there, staying on the wards, or in ICU at any time. As the FSC, I also organise coffee mornings once a fortnight at the WCH on the Play Deck, level 1. Please feel free to join us for a relaxing time with myself and other HeartKid families. Hopefully I will soon become a familiar face for you to catch up with, have a chat, a coffee and to provide support and friendship for Heartkids and their families
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Innaugral State Manager Announced for HeartKids of SA
My name is Kerry Southwell and I am thrilled to be part of the HeartKids of SA family. I have worked in the non-profit sector in Fundraising and Marketing for the last 15 years, predominantly working for children and adults with intellectual disabilities.
I feel passionate about HeartKids of SA as I believe it is the ‘voice’ of our gorgeous babies and children with heart disease. Therefore, my vision for HeartKids of SA is to secure funding so that we may offer the support mechanisms needed for our babies, children and their families.
I want to ensure that HeartKids of SA programs are strong and delivered where most required. Also, I want to ensure that the needs of each family member who supports a child with heart diseases’needs are met. I would like to see more support for our families who live in rural areas as currently, about 25% of HeartKids of SA members live in country South Australia. Other areas that will be addressed are: a) more support for our teenagers b) obtain funding for more support to our babies, children and families who have to travel to Melbourne. (HeartKids WA attract annual state government funding initially for this reason.) I also plan to implement a media campaign and to visit service clubs and business networks to assist in lifting the profile of HeartKids of SA.
Our hard working Fundraising Committee is organising a Quiz Night in May, so I look forward to meeting a lot of you there!
My door is always open and I’d love to hear from you. My Mobile is 0420 363 155 or email
The Max Round Memorial Quiz Night
The Max Round Memorial Quiz Night is only $15 per head and has tables of 10, lots of prizes to be won, silent auction items, fun and games!
So organise a babysitter, pack some wine and nibbles, grab 9 friends (or join a table with other HKSA members) and come along to support HeartKids of SA.
The Max Round Memorial Trophy will be etched with the winning tables’ Team Name and put on display in the WCH Cardiology Department.
Call Cathie Turner (HKSA Secretary) on 0406 165 111 to book a table (Payment will be arranged on confirmation and seats are limited, so call now!)
HeartKids Australia Media Releases
Please click here to view HeartKids Australia’s Media Releases.
Busking to the Beat
HeartKids is running a new school program called ‘Busking To The Beat’. Our aim is to raise awareness of the high incedence of Childhood Heart Disease (CHD) as well as raising much needed funds. Will you join us in the fun?
Click here for more information.
Read all about Kids Heart Research DNA Bank
Kids Heart Research DNA Bank. An initiative to help understand the cause of congenital heart disease.